Leonie was born on 6 th February 2002.   The pregnancy was terrible, with an original diagnosis of heart failure and fetal hydrops, we we...

Esmée was born on 14th may 2011, at 35 weeks by emergency c section at Broomfield hospital, Chelmsford, Essex. Uk. she was not breathing a...

Holly Mitcheson Born 5-18-01, full term, no indication of any problems until she was delivered. Holly had a diaphragmatic eventration at bir...

Aaron was born on 19-05-2008 by planned c-section. Doctors had been monitoring Aaron carefully since our 20 week scan showed he had bilatera...

Biggs Family Columbia, MD Jackson was born on October 10, 2001. On October 11, 2001, we had a team of doctors in our hospital room picking J...

Nicole was born 8-31-1995 and was diagnosed with Escobar syndrome after being a patient at Shriner's Hospital in Houston, TX. Nicole is...

My name is Dee Dee and I am the mother of two boys aged 8 and 5. My oldest has Escobar Syndrome. When I was pregnant with Elijah we were t...

In February of 2006, my husband and I flew to Russia to adopt our beautiful little girl Maria Elizabeth, whom we call Masha in accordance wi...

We have 3 children......Collin-6 yrs old (born in 2004), Haley-4 yrs old (born in 2006), and Mason-2 yrs old (born in 2008). Like many other...

Ryder Oakley is 2 years old, born May 16, 2008. He was just recently clinically diagnosed with Escobar Syndrome. He will not let anything...

Reece was born January 12, 2008. After an initial diagnosis of Trisomy 18, genetic testing results in July revewaled Reece has Multiple Pte...

Hi there, we are the Collins family living in New Zealand. We have a 2 and a half year old, Ashling, who is our surviving twin with Escobar...

Hi, we are the Sedeys and we have three children, Gavin (5), Owen and Caleb (5 month old twins). Owen was born with Multiple Pterygium Synd...