Aaron was born on 19-05-2008 by planned c-section. Doctors had been monitoring Aaron carefully since our 20 week scan showed he had bilateral clubbed feet. The Doctors were pretty sure something else was wrong but did not know what it was, they were worried he was not moving very much and decided they would deliver 2 weeks early.
When Aaron was born he had bilateral clubbed feet and both hands were fisted leaving him with tight contractures in his fingers. He had torticollis in his neck and his legs did not fully straighten. His feet are also rocker bottom. He has a short webbed neck, micrognathia, small airways and obstructive sleep apnea. He is short in stature. We are still awaiting a confirmed diagnosis but Doctors believe escobars. All tests so far have come back normal.
He has had 2 surgeries, tenotomies on both feet and a bilateral inguinal hernia/testes release.
He is such a happy little man. Always on the go and is unbelievably determined. He is fiercely independent and will have a go at anything. He takes everything in his stride and is just our little inspiration! A very strong willed individual.
Feel free to contact me at kath.perry@hotmail.co.uk
